Thursday, May 17, 2012

searching my dusty mind

 
            “U.S. aims to halt memory disorder.”  This headline appeared on the front page of the local newspaper today, from Melissa Healy of the Los Angeles Times.  Dr. Francis Collins, the director of the National Institute of Health, “promised a raft of new research aimed at preventing, stopping and reversing the memory-robbing disorder by the year 2025.” 
            I’ve seen too many minds and bodies affected by Alzheimer’s disease.  The view through a window of an open lawn transforms into a bustling train station.  Patience is lost, replaced by frustration and anger.  Having always welcomed guests graciously, bodies curl up in bed, unresponsive to family’s touch.  Bright eyes lose their luster and become vacant.  Smiles turn into permanent frowns.  I hope that this new research is successful, for the benefit of future patients and their families, friends, and caretakers, and everyone in between.

            The experience of brain fog is incredibly frustrating and confusing and stressful, however I do not mean to equate this experience with that of Alzheimer’s disease.  Brain fog is a symptom that is common to depression, Fibromyalgia, Chronic Fatigue Syndrome, and Sjögren’s Syndrome, but is not limited to these.  To experience brain fog is similar to the sensation of “being out of it” or the sluggishness one feels after taking cold or allergy medicine. 
            I always felt like I had a good, solid memory.  Not like perfect recall, that would have been interesting, if not burdensome, but I was able to memorize things easily and remember events and conversations in detail.  I still maintain some of my ability, but a couple years ago started noticing some disturbing changes.
            My mind is not like it used to be, I’d tell myself, shaking my head.  I was partially joking, being in my early twenties, my mind had no reason to be losing track.  But I still would lose my train of thought in the middle of telling a story.  I’d be describing something to friends, get stuck, and then hint at the word for which I was searching my dusty mind.  An avid reader, I also began having difficulties focusing on the words on the page and following the story.  Becoming frustrated, I stopped forcing myself and watched television programs instead.  I also started to forget things that I had just done.  What is happening to me?  I wondered.
            These symptoms continued, along with getting overwhelmed when my surroundings grew noisy, and starting to mix up the orders of words and letters when I spoke.  In order to counter these instances, I did crossword puzzles and Sudoku.  Shortly after starting, I stopped doing these puzzles because, one, I did not enjoy struggling through Will Shortz’s tricky clues, and, two, I got bored of Sudoku.  Eventually, I was diagnosed with all of the illnesses I listed above.  At least it wasn’t my imagination that these things were happening, there seemed to be a reason. 
            Although recognized as a serious problem, brain fog, or cognitive dysfunction, is not widely understood.  Hypotheses are that brain fog could be a result of lack of restorative sleep, mental distraction due to pain, brain abnormalities, or premature brain aging.  Another idea is that some etiologies disturb regulating parts of the brain, affecting the overall level of consciousness.  Chronic stress might also cause brain fog, overstimulating the brain and effecting sleep.
            Even though I continue to suffer from these episodes when my brain seems to be hijacked into another world, I have begun to cope.  Slowly, I eased back into reading, and now if I don’t read an hour every day, I feel like I missed something.  I carry a book wherever I go.  Also, I am learning how to cultivate mindfulness, giving me the ability to let these episodes pass without being so hard on myself.   Sometimes I get glimpses of that awesome memory of which I was always proud, recalling exact words in conversations and remembering details of trivial events.
           

No comments:

Post a Comment