Sometimes I can’t help but feel
completely unsettled. It feels as
if I am missing some key piece of information that would clearly illuminate
things. Then, I would have the
answers to the questions that I have been asking all along. I would no longer feel as if the ground
upon which I am walking is shifting beneath my feet, about to open up and
swallow me whole. I tread lightly
on these unsettled days, tiptoeing around, so as not to disturb the forces in
this world that are balanced just so delicately that I am left to place one
unsteady foot in front of the other.
I
lie in bed, morning light washing over the sheets and blankets, keeping my arms
and legs and body warm and safe, in a cocoon. My heartbeat grows stronger and faster, with the engrained
memories of my past. I take deep
breaths to calm my rising anxieties and remind myself that this is another
day. This could be the day when
things change—when the pain melts away and my strength and energy return and
life is sweet and full of humor and possibility…. I roll over onto my side and push myself up. I commit myself to the day by touching
my feet to the floor and accepting the weight of my small but heavy body. Every day starts the same.
I
have hopes for which I am afraid to hope.
I hope for the ability to go back to school to explore the intricacies and
insights of taught knowledge. I
hope for a meaningful career, something that makes sense to me where order can
be made, so that I may support myself.
I hope to have money and energy left over so that I may socialize with
friends and create art. I hope for
a family of my own—for a loving, supportive, and understanding husband, and
bright, happy, optimistic children.
I hope that I can bear those children and raise them to be safe in their
own bodies and minds. I hope for a
house with lots of windows through which I can see butterflies, birds,
honeybees, and dragonflies, flitting about my flower garden. I hope for a piece of land to grow
fruit and vegetables and to have chickens, enough to live from, with trails
leading through a forest by a stream.
But
I am afraid to hope for these hopes.
My body feels drained of energy and strength. Some days I can walk three miles, while others I can barely
walk to the end of the street. Two
years ago I hiked rim-to-rim of the Grand Canyon. It was a stunningly beautiful and physically draining
hike. But I did it. Then I hiked fifteen miles through
Snake Gulch before beginning a 4,000 mile solo road trip, driving and hiking
nearly every day over the course of two weeks.
Last
year I started working and living on a family-owned organic farm. Up at the crack of dawn, planting,
weeding, cultivating, through the height of the day, and falling into bed at
the end. I did that for three
months. Then one night I started
burning up and couldn’t sleep and my pain and stress overwhelmed me. I could hardly get out of bed for two
weeks.
It’s
been almost a year since that episode.
I worked a bit at a local coffee shop, but I could hardly do anything
else. My energy waxed and waned
and finally I couldn’t serve coffee drinks any more. I realized that the only thing I could do, which is perhaps
the hardest thing for me to do, was to devote my time to understanding why pain
and fatigue had taken over my body so that, maybe, one day, I could hope my
hopes once more.

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